Stats: WellHuck was born at 3035 grams which converts to 6 lbs 11 oz and was 3950 grams at one month which converts to 8 lbs 11 oz and now we’re sitting at 4420 grams which converts to 9 lbs 11 oz. So he gained two pounds exactly in his first month and one pound exactly in his second month. This is great because he needs to be at least a certain weight before his next surgery. Hoping he gains at least a pound a month! (But since it has taken me a few days to post this, he’s already crossed over 10 lbs!)
He is wearing size 1 diapers and just outgrew the last of his newborn clothes. Which caught me a little off guard and I realized all of the clothes we brought with us are newborn! Had to go buy a few new outfits because they want him wearing clothes now.
Eating: Huck is currently eating 50-60 ml of regular breastmilk at each feed, typically about every 3 hours. This amount is down a bit from 1 month due to some significant reflux issues. He’s slowly working his way back up though. In the past few days he has taken his old normal of 75-80 a couple of times.
I’m still exclusively pumping for him, still hating it, still sticking it out. 10 months to go. 😝
Sleep: His daytime sleep has gotten pretty consistent. He’s normally awake for an hour and is happy and playing, then naps for two hours. We’re still working on a night time schedule but last night he was awake and upset on and off from pretty much 6 pm to 11 pm and then he slept from midnight to 4 am, ate a bottle and got a picc line dressing change, then slept again from about 5 to 9 before he was ready to eat again. He sleeps mostly in the mamaroo now which helps his reflux a lot.
Milestones: We started tummy time! He got the all clear at 6 weeks post op and we started giving it a go. He doesn’t love it but he at least tolerates it for a short bit before he’s over it. He actually prefers to do it more on my chest than on the bed.
We’ve gotten lots of real smiles! And he’s been cooing at me a lot lately.
Medical Milestones: Currently still inpatient on the CVICU heart failure unit while we wait on our Glenn surgery. We will be here until then. He is on milrinone and clonidine + reflux medications + a couple of diuretics. He is not on any respiratory support at the moment and taking all feeds by mouth. He is still getting a little background nutrition help from tpn and lipids, and getting therapeutic doses of lovenox for a blood clot in his picc line. The Glenn is tentatively scheduled for 4 months old on September 13 but they will start discussing options at 3 months and 5kg weight.
- Being held
- Laying on his back and looking around
- Anything with lights and sound (I’ve been letting him watch newborn stimulation videos on YouTube and he loves it)
- Warm milk
- Diaper changes
- Picc line dressing changes
- Taking his medicine
- Lovenox shots
We are so in love with this little guy and can’t wait to get him home. He is developing such a cute little personality and I’m so amazed at how well he’s handling being in the hospital. I guess he doesn’t know any different, but with as much stuff is hooked up to him, he really doesn’t seem to mind it much. I spend my days just hanging out with him all day, trying to have as close to a normal experience as I can with him. His doctors tells us all the time that life after the Glenn will be so much better and I’m starting to get anxious for that. Almost there!
Happy two months, sweet baby Huck! Mama, daddy, and Whitlee love you so much!!